I have already posted on Being Sick & the Sick Role that lays the foundation for this series of posts. I also posted on how we don’t choose to be sick, don’t look sick, don’t want to be sick, and how tricky it is to help people understand how we are sick so we can get the help we need without having them treat us like we are sick. You can find that under Who Volunteered Me to be Sick. I have a lot to say about work and chronic illness so I am breaking it down into several posts. When people have an acute illness and take on the sick role, they are exempt from the usual work, family, community, and other obligations while they are sick. When we get pneumonia or the flu, or have surgery, we can take some time off and in fact we are expected to do this to aid in our healing. What does it mean when we have a chronic illness where healing probably won’t happen and remissions may not last long? What does chronic and possibly degenerative mean for our responsibilities to our families, our work both within and outside the home, to our community and church work? We can’t take a few weeks off, or even a few days, to get better because chronic means forever.
Thus far I have shared my experience in Kyrgyzstan of spending a couple of days at Son Kul where I slept in a yurt and learned how to milk a mare. We also traveled around Issyk-Kul lake. It is believed that the Chinese traveler Jan Chan Tzan explored this lake in 128 BC as part of his 6-year travels. The lake is a […]
When I developed my chronic condition the first thing that happened to my life was that I started spending a lot more time in my doctor’s office. So much time that I thought I should be collecting frequent flyer points towards a free office visit. Or I should be given my own examining room with a recliner, a stereo system, and wet bar – and stocked with my favorite magazines. The nurses kept telling me they were working on it in the basement. What I received was a lot of time to read novels while I waited and time to think about this relationship that was forming. Through these frequent visits we learned how to work together and formed an excellent working partnership. In a series of posts I will be sharing with you what I believe made our relationship work so well and especially what it was about the relationship that contributed to my healing. Originally I had written a section on what patients need from a doctor and then another section on what patients need to take to the relationship. As I was editing them for posting I realized that our relationship worked because we each brought complimentary qualities, knowledge and skills. We were collaborative partners with a shared goal of controlling my symptoms and increasing my functioning. According to Robin DiMatteo,[i] patients are most satisfied with partnerships rather than authoritarian control by the doctor because partnerships allow us […]
The first promise of what was to come on my New Dawn climbing rose. The plant was covered with buds and I anticipated a beautiful show. A week later there was a beauty to the entire space being filled with pale pink roses – but it couldn’t compete with this one individual blossom. Are we the same? Does our […]
Before I decided to go to Kyrgyzstan, Sharon told me that she had drunk Kumis, fermented mare’s milk. My immediate response was “Where in the world do you get mare’s milk?” Duh, from a mare. I was intrigued so as soon as I made plans to visit Sharon I told her to see if she could arrange for me to learn […]