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Meaning in a Quilt

During the first year after being diagnosed with fibromyalgia, I was desperately trying to hold on to the life that I had lost. I spent hours sitting, looking out the window, trying to figure out how to make sense of what was happening to me and how to cope with my fear. I needed a diversion so I started piecing together a new quilt […]

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And My World Came Tumbling Down

Welcome to my blog. In January, 2004 I was diagnosed with Fibromyalgia at Mayo Clinic and, along with a lot of other information, I learned it is important to pace my activities and control my environment to reduce stress. I’m not sure I totally comprehended what this meant because I still wanted to work full-time, be an equal partner with my husband in maintaining our home, being a parent, loving our  grandchildren, engaging in worship at our church, and having fun with our friends. Here is what I wrote in my journal: I don’t know how to judge a good day from a bad day – I don’t know how to live my life. If I don’t do anything at all, I have relatively low amounts of pain but being on the sofa all day isn’t a good day. When I go to work, socialize, and exercise I am emotionally happier but it leads to more pain the next day. (Journal, 01/04)  I found a good book (there weren’t many published at that time) and I believed that I would soon have my life back on track if I did everything right but this was delusional. The journey that first year was very rocky, with small steps forward and many falls backwards. I was committed to doing everything right but it wasn’t easy knowing how to apply what I learned to my everyday life. It became evident that the only way I knew how […]

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